TCSF 4th Annual VIRTUAL Run, Roll, and Stroll

Date and time

Wednesday, September 30, 2026 · 7:00 PM

Location

Virtual - Race in your own community!, Virtual, MO

About This Event

Join TCSF’s 4th Annual Virtual Run, Roll, & Stroll

Walk, run, roll, or stroll 5K (3.1 miles) or 1 mile anytime, anywhere between October 1–31, 2026 in honor of the SCN8A community! This virtual race connects participants worldwide while raising funds for The Cute Syndrome Foundation (TCSF), a nonprofit dedicated to SCN8A awareness, research, and family support.

Registration

$10 USD includes: entry, donation to TCSF, printable race bib, and a virtual finisher badge.
Shirts & merch available separately in our Bonfire Store!

Why a Virtual Race? SCN8A is rare, and families are spread across the globe. A virtual event allows affected individuals, families, friends, researchers, care teams, and communities to join together from anywhere, anytime - whether in your neighborhood, favorite trail, or even on a treadmill.

What’s Included -Donation to The Cute Syndrome Foundation -Printable race bib & finisher badge: self-report your time for 5K or 1 mile on RunSignUp -Chance to win TCSF swag in three categories: fastest participant, biggest fundraiser, and most spirited photo

Make It Fun

Invite friends and family to join you
Dress in purple or race gear and share photos
Create a team and raise funds for TCSF!

Fundraising You can set up a personal or team page during registration. Teams are a perfect way to celebrate a loved one, rally friends and family, or participate as an organization. Share your link with friends and family to boost awareness and support!

About SCN8A SCN8A is a gene that helps regulate brain cell function. Variants can cause severe challenges, including difficult-to-control epilepsy, developmental delays, movement disorders, feeding and respiratory issues, and more. Symptoms usually appear in infancy or childhood and typically last a lifetime. There is currently no cure for SCN8A-related disorders.

Why Support TCSF?

Since 2013, TCSF has:

Connected with 600 families in 53 countries
Funded $500,000+ in SCN8A research
Provided $55,000+ in patient assistance grants for therapies, medications, and equipment
Awarded $71,000+ in travel grants for families attending the Annual Gathering
Hosted 1 Annual Gatherings bringing families, clinicians, and researchers together
Reached 90,000+ people with this year’s SCN8A Awareness Day campaign
Supported caregivers through private groups, grief recovery, and life coaching
Built community through local Cute Connections meetups
Honored the memory of SCN8A angels

Your participation makes a difference. We are stronger together!

TCSF 4th Annual VIRTUAL Run, Roll, and Stroll

About This Event

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